Todays Tests

We are very happy to announce that Tyler is in recovery & did really well!

After Tyler’s ABR today his doctors told us that his brain is responding to sound just as it should :-) YAY!!!

They can’t tell what he does with the sound and information when he gets it, but his brain is getting it :-) He has severe loss in his right ear, but the ENT should be able to help figure that out for him, maybe a blocked tube, and maybe something that can clear up on its own..... But when they bypassed that he heard well.

More Tests...

Hi all, :-) Just to let you all know Ty had more tests yesterday. The docs are very confuzzzzed & don't really know what to look for next. He needs to have muscle & tissue biopsies during his surgery, so that'll save 1 lot of anesthetic!! They don't think its progressive "still" which is great. They have a feeling a syndrome will be named at some time. Besides that, we keep working on him getting stronger, & although a diagnosis will be nice, as maybe there is medication to help him.

So hes going for his ABR "auditory brain response" test Friday, so again, no eating & drinking, which is like saying blah blah. How do you tell him Mummy isnt being mean, I promise! Then ready for the next surgery for his "bits & pieces" LOL I'll keep everyone posted xx