Todays Tests

We are very happy to announce that Tyler is in recovery & did really well!

After Tyler’s ABR today his doctors told us that his brain is responding to sound just as it should :-) YAY!!!

They can’t tell what he does with the sound and information when he gets it, but his brain is getting it :-) He has severe loss in his right ear, but the ENT should be able to help figure that out for him, maybe a blocked tube, and maybe something that can clear up on its own..... But when they bypassed that he heard well.

The Story So Far... part 6

Its been a while, so I thought I'd update :-)We've been to have more tests, but nothing came from them. Doctors have still not got much of an idea as yet.... We have lots more lurvly :-( equipment to help him get stronger, sooo glad we have the room!He was feeling poorly a few days ago, but thankfully that passed and only a little weight lost. Its like he is in a little time capsule, almost like he isn't growing.....?He can sit, hold a cookie, shuffle in circles on his butt, he is a smart kid too. So he'll get stronger when he's good & ready I'spose :-)Tests more visits coming up over the next few weeks, so I'll update at some point.

The Story So Far... part 3

Had the sonogram, not looking good to avoid an op......Looks like he'll need to have something to put things where they should be! Not happy, but will find out tomorow what the doc thinks about the report.

The Story So Far... part 2

We went to the Arnold Palmer hospital Friday ; had "the blood test" The tech was so much better; Tyler didnt even cry, they got what they needed with a smile :-) So, in a week or 2 we might have an answer. If he has a chromosome dissorder, we will have a name for whats wrong.....; maybe we wont, which is what we're hoping for of course.