Its been a while, so I thought I'd update :-)We've been to have more tests, but nothing came from them. Doctors have still not got much of an idea as yet.... We have lots more lurvly :-( equipment to help him get stronger, sooo glad we have the room!He was feeling poorly a few days ago, but thankfully that passed and only a little weight lost. Its like he is in a little time capsule, almost like he isn't growing.....?He can sit, hold a cookie, shuffle in circles on his butt, he is a smart kid too. So he'll get stronger when he's good & ready I'spose :-)Tests more visits coming up over the next few weeks, so I'll update at some point.
Showing posts with label progress. Show all posts
Showing posts with label progress. Show all posts
Friday, 13 March 2009
The Story So Far... part 6
Its been a while, so I thought I'd update :-)We've been to have more tests, but nothing came from them. Doctors have still not got much of an idea as yet.... We have lots more lurvly :-( equipment to help him get stronger, sooo glad we have the room!He was feeling poorly a few days ago, but thankfully that passed and only a little weight lost. Its like he is in a little time capsule, almost like he isn't growing.....?He can sit, hold a cookie, shuffle in circles on his butt, he is a smart kid too. So he'll get stronger when he's good & ready I'spose :-)Tests more visits coming up over the next few weeks, so I'll update at some point.
The Story So Far... part 1
We have finally started testing to see what might be going on in Tylers little body :-)We had decided after the first 3 failed attempts at drawing blood at 6 weeks, that was enough! So we decided to wait for him to get a little bigger so the blood draws would be easier. Well Monday we tried again.....We managed to get 1 test completed that will tell us some basics plus a full metabolic work up. After many attempts; blown veins we decided to wait AGAIN! So we're going back in on Friday for the rest
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